Parents give daughter, 5, visual bucket list after diagnosis

BELLVILLE, Ohio (AP) — The parents of a 5-year-old in central Ohio have created a visual bucket list for their daughter after she was diagnosed with a condition that will eventually cause her to go blind.

Elizabeth “Lizzy” Myers, of Bellville, was recently diagnosed with Usher syndrome type II, a rare genetic condition that causes hearing and progressive vision loss, and can result in blindness.

Her parents have about five to seven years to get her out and see things, particularly at night, her father Steve Myers told the News Journal (

“Otherwise, it would be too late to do things like this (view the night sky) or catch lightning bugs,” Steve said

Lizzy isn’t aware of her condition yet, but they plan on taking her to attractions like the Northern Lights, the Grand Canyon, Niagara Falls and Yellowstone. The list also includes looking at the night sky and sunsets on the beach.

That’s why they took her to Warren Rupp Observatory in Ohio on Tuesday night and let her gaze at the moon and stars through a telescope.

Lizzy was diagnosed with bilateral hearing loss over a year ago. Her doctor recommended testing for the seven most common types of hearing loss, which all came back negative. He then pushed for genetic testing, which the parents initially denied, trying to spare Lizzy from more poking and prodding.

But now they’re grateful they went through with it.

“If they hadn’t pushed us for genetic testing, we would never have known what’s to come for Lizzy,” Steve said. “Then it would have been too late.”

The Myers hope their story encourages other parents to get their children tested.

“It was almost one of the biggest mistakes,” Christine said. “I don’t want another family to miss out on this.”


Information from: News Journal,


Information from: News Journal,

MEDIA GENERAL may allow you to upload, post, transmit or otherwise provide content to MEDIA GENERAL Web sites, including, but not limited to, photos, video, audio, comments, articles, blogs, forums and any other such communication in which you provide content to the Web site ("User Content"). You agree that you are solely responsible for your communications and any content you provide. Read full terms and conditions of use by clicking here.

blog comments powered by Disqus