Three Degree Guarantee donation to help sufferers of rare disease

ROANOKE (WSLS) - 

After a year of forecasting accurate weather WSLS is handing out "Three Degree Guarantee" money to different charities.

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Christina Johnson, the station's programming coordinator, nominated a charity called "Soft Bones."

The non-profit was established back in 2008 to help people who suffer from a rare disease called Hypophosphatasia.

Christina learned she had the disease and passed it on to her son after he started getting his teeth in at just three months and by seven months they had fallen out.

Doctors then diagnosed the mom and son with the rare disease that causes brittle bones and teeth.

She quickly turned to the group "Soft Bones" and its founder, Deborah Sittig, whose son was also diagnosed with the disease.

"I said, ‘oh I have to find the patient group,' what's the American Cancer Society for people with Hypophosphatasia only to quickly find that there wasn't one, so out of a labor of love and wanting to be able to connect with other patients and feel like I wasn't alone on this journey we started Soft Bones," Sittig explained in a phone interview.

One benefit "Soft Bones" offers patients is a regional meeting with a specialist to answer questions, because the disease is so rare it's often times hard for patients to find a specialist close to home.


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